Hello and welcome to Moose Head Homestead! This blog is to share the adventures of a simple homestead in the Midwest. I share about real food, homesteading, prepping, outdoor activities, getting back to basics, encouragement, God's beauty, and of course Miss Daisey Mae! Thanks for stopping by! 🐔🐥🐾🦋🌿
I had an appointment today with a rheumatologist. He was a nice guy and very thorough. I was referred to him for help in finding the cause of my bone marrow edema.
I was diagnosed with rheumatoid arthritis today....
I was bummed.
I am having issues with my right hand. My pinky is heading off in another direction lol and the other fingers are more knobby. My wrist hurts there, too. I have been having trouble with doing the dishes for quite some time often dropping and breaking things. (We are moving to more plastic lol) My knee is getting better, but does not bend properly and my never. But, the painful flare is dissipating.
He started me on a medicine called sulfasalazine, which is a medicine for inflammation, but not a pain medicine. So not an NSAID. I hope it helps. I know there is no cure for this and like my MG, we need to slow down the progression/flares.
I am still going to do the things I love like gardening and sewing until I just can't any longer. It may take me longer to complete tasks, but I am not going to stop doing them. I can't. Now, granted with the Myasthenia, I will be resting often with no choice as it is still progressing. I am hoping to start a very beginner yoga class in April as long as my body will let me. I missed the start of the last class because of the bone marrow edema.
Honestly, I just want to enjoy life. I just have to do that now with Myasthenia Gravis, Rheumatoid Arthrits, and Fibromyalgia. It can and will be done. :)
We have the choice to walk in victory and not in defeat no matter our situation, whether we experience symptoms of sickness or not. We live in a fallen world and we are not immune to trials and tribulations such as sickness, disease or pain. There are times when we can rebuke and stand against such things and they flee, but there will be times when they will not. Our victory comes when we trust in Him anyhow, keep our eyes on Him, and don’t give satan a foothold or inroad into our life. Paul, to me, was a great example of this. He was beaten, shipwrecked, stoned, was weak, harassed by a demon, and more. Yet, through all that, he had the victory. He kept his eyes on Christ, praised Him in prison, continued to spread the gospel, and kept fighting the enemy. God promises us we will be delivered. That means we have to be put in situations that require deliverance. We are not immune! We may see our deliverance here on Earth several times over in different situations. We may also see it by …
It happened. I didn't want it to. I thought I was stronger than that. But, looking back, I see that I let it happen.
For several months now I have not been feeling myself. I have been irritable, anxious, intolerant, angry, smug, and overwhelmed.
I gave satan a foothold. I gave him an inroad.
I am probably like many of you. Checking my Facebook every morning...you know, the "newspaper" we read first thing to see the latest happenings with our friends and family. Only it's not that anymore. It's become a cesspool of politics, anger, greed, self indulgence, how to fake your life for the world to see...so much is not even real anymore. It's exhausting trying to wade through it all to find some sort of truth, to find something real...Oh there is the occasional scripture I come across, but even then it is a photo of a scripture that is either taken out of context or from a translation that isn't even close to the real meaning.
Most people hit their prime in their 20's and 30's. They take life by the horns, have lots of energy, do lots of fun things, and enjoy it to the full.
I never thought I'd get to experience a "prime" of my life. In my 20's and 30's, I was sick and dying. I suffered from a neuromuscular disease called Myasthenia Gravis, a connective tissue disease called Ehlers-Danlos Syndrome, inflammatory arthritis, severe fibromyalgia, and cancer. I was a hot mess to say the least. My diseases progressed and I was steadily declining. I was in a wheelchair often, could not swallow normal food, could not sit up for very long, in severe pain, and had heart issues and difficulty breathing. I was out of treatment options after plasmapheresis and IVIG failed and caused deathly reactions. I could not take any pain medication as I also suffered autonomic nervous system dysfunction and my body reacted negatively to them. In fact, my body rejected everything the doctors tried and …